Wednesday, December 18, 2019

Re-doing my labwork, and adding some new ones

I had my lab work appointment this morning for getting my cholesterol panel rechecked (since the last time we sent it in the lab wouldn't run it due to the blood vials not being labeled with my name).  So I'm getting a full cholesterol panel, along with the inflammatory markers, particle size/density, etc. 

My holistic doctor also wanted me to get my Vit D3 and homocysteine checked and, due to my high copper levels, my thyroid doctor wanted to run a Wilson's disease test.  I'm also getting my thyroid levels rechecked.  So all the tests. 

They had to draw about a pint of blood, but part way through I started feeling my arm fall asleep and slightly light headed.  I told them I had to get the lab work done today because I wouldn't be in town for the holidays.  The nurse stopped the blood draw and they got me water and found an empty room with a table I could lie down on.  After a few minutes, the nurse came in to check on me, and finished drawing the remaining vials.  I stayed on the table and asked her to send my hubby in, as he was sitting in the waiting room and had no idea what was going on.  I finally started feeling better and we prepared to leave.  My doctor came back in and went over all the tests we were doing and wished us a Merry Christmas on the way out.

Hopefully we'll have the results in a week or two.    

Tuesday, December 3, 2019

Heavy Metals results and feeling super blessed!

I had a phone appointment with my holistic doctor today to go over my heavy metals lab work.  Surprisingly, my aluminum and mercury levels are lower than expected (myabe the little bit of GI Detox supplement I took got rid of some?).  Arsenic is also low, but lead is high, as is copper, manganese, and zinc.  Calcium is also on the high side, despite my significant lack of dairy aside from butter and cheese.       
I asked her about the Advanced TRS detox supplement, which has been recommended by some people on FB for those wanting to detox from vaccines.  She said I could use it if I wanted, but recommended trying to get some more information from the company first as there's not very much on their website.  She also recommended a different detox formula that she uses called ACZ Nano Zeolite, and said I'm free to look into that one as well.

She told me about low dose naltrexone for autoimmune disease healing, which sounds like something I need!  She said it helps the immune system calm down after attacking itself and might help me with my blood sugar control and thyroid balance.

She even asked me when my last vaccine was.  "I don't remember, but I know I got them as a kid.  I have been doing research on them for the past two years and am now firmly against them."
"Good, don't get any," she said. 

My heart literally leapt for joy after hearing her say that.  Doctors like her are so few and far between.  She asked if we were still planning on having kids, and I said yes, just trying to figure out finances.  She totally echoed my own sentiments on the matter, saying that we would never be financially ready and that we should trust God because He will provide.  She said to let her know when I'm pregnant and she and the other ladies in the office will be praying for us.  I am so beyond blessed to have her on my health care team.  They have been nothing but encouraging, supportive, and affirming in my choices and beyond instrumental in helping me get my health back on track.  I cannot praise Nan, Kirby, Megan, and all the others at Seasons Wellness enough.   

Thursday, October 24, 2019

October Appointment

This will be quick and short because it's almost time for bed.  I had my appointment with Carrie today and my A1C came back at 7.6 (endo) / 7.0 (Dr. B).  That's a 171 mg/dl average bg.  So higher than in June.

My thyroid doctor is running a full (and I mean FULL) cholesterol panel with all the bells and whistles (particle size, inflammatory markers, etc.) and I told her I want a calcium score done.  My cholesterol did come back lower at my endo's which is something that made her happy, though I'm still not convinced lower is better.  So I'll hold my judgement until the full panel comes back.

My holistic doctor also sent me the heavy metal test I'm going to do to see how much crap is in my system.  I'll probably do it on Saturday since it's easier to do the urine collection at home (and not at work).  So here's to collecting data! 

Monday, October 7, 2019

Last night's low scare

Thankfully, scary, crazy things don't happen to me very often.  Last night was a poignant reminder to both me and my hubby that the daily fight for my life with diabetes is real.

Even though many people in this world have to bear the temporary burden of living with diabetes, not many non-diabetics truly appreciate or understand what their diabetic companions have to deal with on a daily basis...just to stay alive.  That's usually the case with things in general - unless something hits you on a personal level, you don't have any sort of idea what it's like for someone else.  Experience makes you wiser.

Last night, at 11:43pm, I was getting my number and preparing to go to sleep for the night.  My glucometer read 182, while Dex read 167.  Because Dex is notoriously likely to be off from my actual number, I opted to trust my glucometer and treated my blood sugar with the usual 2 unit correction via IM.  The insulin usually starts working within 5-10 minutes, and stays in my system for no more than 2 hours.  I set my alarm to wake me at 2am so I could see how well it had worked and then took my Levemir shot of 8 units.  It bled ever so slightly, which is rare, but it didn't really bother me.  As I readied myself for sleep (I think I read a quick chapter in my book?), I started to feel a shaking sensation. 

I checked Dex, and he showed a steeper than expected BG line trending down at a fast rate.  At 12:13am, I checked my number again.  Glucometer said 129, Dex said 128 with arrows pointing down.  I did a quick calculation and scarfed down 4 glucotabs.  I started shaking more.  I told my hubby what was going on. 

Why was it going down so fast?  It had only been half an hour and I was 53 points lower.  My shot was supposed to take me down to 83, so I was half way to my target after only 30 minutes.  That was too fast.  

12:19am, glucometer said I was 110.  Dex said 116.  Still dropping.  I had another glucotab.
12:25am, glucometer said I was 95.  Dex said 104.  Still dropping.  I panicked and told my hubby I was scared.  It was still dropping and I wanted to call 911 to have them here in case I passed out.  I explained the situation to the dispatcher and they sent someone over right away.  I was shaking while I waited and gulped down some raspberries.  My number went to 87 at 12:35am.

I think an ambulance and a fire truck arrived, but they sent the fire truck back and had 2 of the 5-6 paramedics who came stay.  They checked my number with their meter and it read 88.  They took my blood pressure and pulse too - both normal.  I explained that if I stabilized I wouldn't need to hop a ride to the ER.  I just needed to wait out the insulin activity time frame. 

Hubby brought in some sweetened almond milk (which had been bought accidentally instead of my usual unsweetened kind) since I didn't have the juice or peanut butter they said I should use.  (I told them I don't drink sugary stuff because I'm sensitive to it, and that I use glucotabs for lows.) 

Dex started showing my number leveling out and the dropping trend ceased.
Finally, at 12:54, my reading came back at 120.  Dex was pointing with arrows up.
I thanked them for being there and finally started calming down. 
Now I'm dealing with the rebound high that's been lingering all day.  I didn't sleep well last night after they left but managed to get through work without too much difficulty, then had a nice 2 hour nap upon getting home.  I may have overreacted in this situation, and I truly don't know for sure why my correction acted this way when usually it's a lot more gradual.  But I'm grateful that things didn't get worse, and that I was able to stabilize myself with out any emergency room visits.        

Thursday, September 5, 2019


So before I was told I was homozygous for 1298 I was prescribed Cipro for a kidney infection by a doctor who was not very happy with me. I told her I wanted a certain antibiotic, which had been successful in treating my last kidney infection, but she wrote it for Cipro instead. 

I have 3 autoimmune diseases (Type 1 Diabetes, Hashimoto's, and Celiac) and have since learned that fluoride is not good for anyone, especially those with thyroid issues. I took the Cipro for 3 days and starting having panic attacks. I would struggle to sleep at night, waking up sweating and with thoughts of doom preventing me from falling back asleep. I would shake horribly and cry, needing my husband to hold me and ground me so I could rest easy. I thought I was having a heart attack.  I stopped taking it after 3 days and called the office that prescribed it to me, and talked to a friend who worked there who could write me a different prescription. 

I then went on to find a naturopathic doctor who could help me recover from the panic attacks. She prescribed me with L-theanine, boswellia, curcumin, fish oil, Vit D & K, and several other anti-inflammatory supplements along with a natural thyroid medication because my levels were all out of whack. 

Turns out I was floxed, the term used to describe patients who have been poisoned by fluoroquinolone antibiotics like Cipro. I now wonder if my MTHFR gene mutation made this possible, as it seems like it also caused the childhood vaccines I received to compromise my immune system. I honestly wouldn't be surprised if they are all linked. Our bodies are so intricately woven there's really nothing that isn't connected.

Friday, August 16, 2019

Save T-Bone's leg!

We are trying to make this reach as many people as possible. My sister rescued her dog, T-Bone, from an abusive situation.  He weighed almost less than half his normal healthy weight. Now he's fighting for his life again after a driver hit him and ran, leaving him with a broken leg.  Please help us and my sister as she is working a minimum wage job and can't afford all the vet costs that are looming over her! This poor puppy deserves a fighting chance!  Here is our fundraiser link: Save T-Bone's leg!

Monday, July 15, 2019

Thyroid results from Low Carb Doctor

My thyroid specialist, Jackie, emailed me my thyroid results this morning. 
TSH is 0.047 uIU/mL     (0.450-4.500)
Free T4  0.85 ng/dL       (0.82-1.77)
Free T3  3.1 pg/mL        (2.0-4.4)
Reverse T3  14.4 ng/dL    (9.2-24.1)
Thyroid peroxidase Ab  24 IU/mL    (0-34)

I'm pretty happy with those numbers so I think I'll be staying on my current dose of 120 mg/day.  

Sunday, June 30, 2019

A1C comparison - Dr. B vs. Endo

I thought it would be interesting to re-compare (because I'm sure I've done this in the past) my A1C using the formula Dr. Bernstein (Dr. B) uses and the one my endo's office uses.

Dr.  B's A1C Chart

My A1C using Dr. B's chart:
Dr. B's A1C Values
Endo A1C chart

My A1C using my endo's chart:
Endo's A1C Values

Same line and same average blood sugar values, different A1C value.  Hmmm...
Technically, my A1C would be lower with Dr. B's chart.  That definitely makes me feel better.  Why can't we all agree to use the same chart?

Wednesday, June 26, 2019

New receiver and appointment time

On Saturday I got my new receiver in the mail.  I compared it to my old one for about a day and it seemed to be spot on.  New one got the purple shinies put on it.  Old one has the pink.

Today I had my appointment with Carrie. 

A1C went up to 7.2%...ugh. 
TSH is low again at 0.117.  I'll have to tell Jackie this before my next lab appointment with her in early July. 
Cholesterol...don't even get me started.  Surprisingly it came back lower than Jackie's lab.  Hmm.  But Carrie tried to push oats, of all things.  Nope nope nope.  I'll keep taking my fish oil, eat more salmon, and work on my thyroid and blood sugars. 

I told her I am noticing a feet-on-the-floor rise in the morning, unless that's the Levemir wearing off as normal.  I'm also seeing a rise in the afternoon right before my 4pm Levemir shot.  I told her I'd do some basal testing.  Maybe I need R in the afternoon with lunch to help with that, or I need to space out my Levemir more?  I don't know.  That's what I've got to figure out.  She seemed okay with that, knowing that I'm comfortable with Levemir and how it works. 

Tuesday, June 18, 2019

New Dexcom Receiver - Ordered!

For the past few months my Dexcom Receiver has been giving me error messages, doing system checks constantly, and frankly driving me insane.  I finally got a hold of tech support and they said the receiver is out of warranty and that I'll have to order a new one. 

After trying to figure out if I needed to have my doctor submit a new RX for it or not, I ended up calling Byram (my new medical supply company) and just placing the order myself.  It will go through insurance and I should hopefully have it soon.  Maybe a week?  Depends.  But as long as I can keep my old one running until then I should be good. 

Perhaps I'll upgrade to the G5 later in the future but for now I'm sticking with the G4. 

Wednesday, June 5, 2019

Thyroid values with LC PCP

Lab work results from low carb PCP. TSH is 10, up from 0.16 in April. Still on the same dose - 90mg/day of Armour. She increased it to 120mg and wants to retest in a month to see if we over shot it. Looking back at my past thyroid labs, I seem to shoot up in the summer months - 48, 95 for TSH the past two years.

Cholesterol - I told her I'm not worried but would be interested in a particle size test. I told her no statins - they raise my BG, give me muscle weakness, and I'm not on birth control. She asked what Dr. B would say about my cholesterol. 

Had to argue with her about my 7% A1C - she said it was good, I said No, it's double normal. She asked what I meant. I told her 4.5 was normal and that under 5.5 was my goal. She tried to tell me it was too dangerous, but I told her 40 to 400 is too dangerous. I want to be 80-120. I told her Dr. B has been Type 1 with an A1C of 4.5 for decades and that she should check his book, YouTube, Facebook, etc. Hopefully she will, but I really just need her to help with thyroid and write insulin rxs for me since I'm dumping my endo.

Wednesday, May 8, 2019

Answered Prayers

I know I missed a post last week, but this week's post is going to make up for it, I promise.

Many of you know about my race to find a new thyroid doctor since my holistic NP decided my thyroid levels were too erratic for her to figure out.  I went to and found a low carb doctor in my area, contacted him April 22 and explained my situation, and made an appointment to see him May 1.

May 1st came and I took time off from work to go to the appointment.  Dr. McColl was very nice, very happy to hear I was already low carb and looking for a supportive doctor.  After an hour long consultation with him, he said he thought my biggest issue was my thyroid, since I wasn't happy with my endo's care and my holistic NP was dropping me.  I confirmed that yes, that was my biggest worry right now.  He said I was probably going to want to talk to the thyroid specialist they have at their other location, which is actually down the road from where I live.  I totally agreed and I made an appointment to see!

Dr. Hone is one of the sweetest ladies I've ever met in the healthcare industry, and she was more than happy to talk to me about thyroid options, all sorts of food tolerance and thyroid testing, Celiac, Type 1, and medications we can try.  She was perfectly fine with keeping me on my current dose for now until we can establish a baseline test so she can see what their labs say about my levels (since they use a different lab than my holistic doctor uses).  I was thrilled to hear that she is even willing to prescribe me insulin since I self-manage and don't use a pump.  She said it doesn't sound like my endo is doing anything that she couldn't do for me, so I can basically drop my endo!!  I was ecstatic!  Dr. Hone also couldn't believe how doctors don't have their diabetic patients on a low carb diet. She was completely fascinated by the law of small numbers and Dr. B, which I explained to her.

I'll be coming in for lab work on May 21 and have an appointment with her to discuss treatment and such June 5.  I am BEYOND THRILLED with how the Lord has worked all of these pieces for me, especially when I thought things were going downhill.  He really was just closing one door to open up a better one!  Lord willing we will have things figured out and smoothed out this year and into next.

One step backward, two steps forward!

Also, just took a home A1C test:

Thursday, April 25, 2019

Out with the old, In with the new!

On Monday the 22nd, I got a call from the nurse at my holistic doctor's office.  She sounded rushed and frantic, and explained that my thyroid levels were so erratic that my nurse practitioner was no longer going to help me treat my Hashimoto's.

That upset me since it felt like I was losing the only shred of support I have and she said I should let my endo treat me.  Seeing as how my endo wants to not suppress my thyroid and probably put me back on Levothyroxine, I opted to search for a new doctor.

I turned to my diabetic Facebook groups and then received a call from my mom, who suggested the Diet Doctor, Jason Fung.  I searched his website and found a list of low carb doctors.  Only one was listed in TN close to me, so I checked out their website.  I sent him an email right away, and got a nice, lengthy response in half an hour!  Long story short, he's a keto follower himself and said he'd do all the thyroid tests I wanted.  I've got an appointment set up for next Wednesday to see if he'd be a good fit!

What I find interesting is that his practice is unique in that they bill their patients with a monthly membership, instead of running things through insurance.  The cost is low and allows for him to give personalized attention to each member even outside of office hours.  Hopefully he'll be able to help me get my thyroid levels normalized and my blood sugars stabilized so I can get my A1C down.  One step at a time, right? 

Saturday, April 13, 2019

Progress report

So I've been doing physical therapy for my back pain since January, and on Monday I will be discharged after my last appointment!  My back is feeling so much better and I'm going to continue to build up my core strength with the exercise program they give me.  Hopefully I'll also be able to get myself a bow and some arrows so I can take up archery again!

On Tuesday I went in to my holistic doctor to get my thyroid labs retested.  It should be sometime next week that I get the results back.  My dose was cut from 120 mg to 90 mg per day.  Wonder how that's been working?

My numbers have been cooperating for the most part.  A few highs every now and then, but I'm trying my best to stay on top of them.  Estimated A1C seems to be about 6.6%.

Wednesday, February 27, 2019

I wasn't expecting that!

I don't even know how this is possible, but my A1C came down! 
That's right, in just a month it dropped from 7.3 to 6.7!  Don't ask me how because I have no clue, but I must be doing something right!

I of course had to explain why I didn't want Tresiba, or a pump, or blah blah blah.  I am probably going to need a new Dexcom (G5?) once my receiver dies.  But I don't need all the bells and whistles and all the issues that come with medical devices that deliver insulin when syringes do the job just fine. 

I am going to get some R and start using that to help cover my food so I have some smoother lines.  That's my next goal...ironing everything out.

Monday, February 25, 2019

Thyroid labs and another diabetes appointment coming up

It's been a little while since my last entry and I've been busy with work, PT twice a week, video games, and running a household.  I got my thyroid labs back today with a new prescription change.

Apparently, my Free T3 is too high so we're cutting my dose back to 90mg a day...hopefully that will help.  Also, my Antibody levels have come down some more!  Yay!  (remember how they were 610 when I was diagnosed?)
DateLabTSHFree T3Free T4Reverse T3TPO AntibodiesRX
February 11, 2019Seasons0.015.11.3
Armour 90mg/day
December 15, 2018Seasons0.0220.916.933
Armour 60mg twice a day

I have an appointment with Carrie on Wednesday, but I'm not expecting it to go well.  MySugr has my estimated A1C at 6.9% (it dipped down to 6.8 for a day and then went back up).  They're averaging about 150.  I'm just struggling to get my numbers down.  I am NOT trying Tresiba, and I'm about ready to try a different NP. 

Wednesday, January 9, 2019

Physical Therapy and Lower Blood Sugars

Before we came home from our Christmas holiday, my blood sugars started lowering.  I decreased my Levemir shot from 7 units at midnight to 5 units, and went to bed with a BG of about 120.  Around 4 or 5 in the morning, I woke up at 68 and had a glucotab.  BG went back to normal of 85.  I've since lowered it to 4 units and my numbers have been beautiful. 

I'm so glad I didn't try Tresiba...and THIS is exactly why I don't want to use it.  My BG has been known to do this before and being able to change my dose on a whim is what I need.

My doctor refilled my Levemir for me and I got it filled in MD.  I've had to fight for my insulin before but being rejected right before a big trip is not okay.  I'm looking for a new doctor but I haven't had any luck yet.

I had my first physical therapy appointment on Monday.  It went well, despite my head cold (also why I am home from work today...I am not feeling well).  The physical therapist was very knowledgeable and after a few tests to see where the pain is, what my strength is like, and what I can tolerate, he informed me that my core is weak, but especially my left side is weak.  He gave me some exercises to do, both new and old, that will help me strengthen not only my abs but also my glutes, hips, hamstrings (because I get shaky/weak in the legs sometimes and my hamstrings are weak) and back muscles.  The core is responsible for supporting the back and that is what I need to improve to help my back pain.  I will be seeing them twice a week this month, starting on Monday after work.      

Friday, December 28, 2018

Things are finally going the right way

Today I got 3 major health things done:
1.  My Levemir prescription was transferred from home and ready for pickup at Walmart.   Yay for getting it before running out!
2.  I heard back from the people at Byram and they got an account set up for me and Dexcom sensors ordered!
3.  I got a physical therapy appointment scheduled for the day after we get home. 

I also found a natural back pain reliever (kali carbonicum) at Whole Foods and it seems to be helping.  I priced some CBD oil (Ananda and Charlotte's Web brands) and will be looking into those more. 

I've been trying Swerve since my holistic doctor thinks stevia may be causing my bloating/gas.  So far, things seem to be much better.

Sunday, December 23, 2018

Levemir Woes

Right before we left yesterday to spend the holidays with hubby's side, I was able to get my Armour thyroid refilled with a 3 month supply.  However, I was not so fortunate with my Levemir refill.  The pharmacy called me and told me that my doctor had denied to refill it due to the fact that they want me to try Tresiba.  I have decided I am not interested in trying it for several reasons:

1.  My blood sugars have been known to change on a dime and require a drop or increase in basal on a moment's notice.  Having Levemir taken every 8 hours allows for more frequent changes as needed.  Tresiba would be taken every 12 hours (I know the doctor thinks it's once a day but splitting provides more steady coverage.  Insulin actually only lasts as much as the amount of insulin on board stays active, and the less you take, the shorter its life span).
2.  I'm worried about negative reactions I've heard some people experience while on Tresiba.  I don't have negative reactions to Levemir. 
3.  Levemir works when it's dialed in correctly.  The problem I have is figuring out how to dial it in correctly.  Once I do that, I won't have such issues.  But that's no reason to switch to a new insulin.
4.  Trying to push me to try a new insulin just because they may get paid more in bonus money really irks me.  I hate that doctors don't consider the preferences of their patients because they're too focused on making money off of them.  The MORE you PUSH me, the MORE I RESIST.

I now have a limited supply of Levemir because I was forced to leave without the RX.  I contacted my doctor and requested the RX be refilled ASAP but it won't be responded to until after Christmas.  I brought a Tresiba pen, as well as the Levemir pen I've had on hand for emergencies.  I'm praying I won't run into any trouble, but I may have to find a TeleDoc to write me an RX in the meantime.

I managed to find an extra Dexcom sensor in my travel bag before we left, so it should last me the whole trip, but I'm still trying to get a medical supplier set up so I can order more.  

Tuesday, December 18, 2018

New DME Supplier and Lab Results

I placed an order for more Dexcom sensors over the weekend and got an email yesterday from Better Living Now saying that they are no longer contracted with my insurance as of November 1.  I tried looking for another provider on my insurance company's website but it was less than helpful.  I decided to ask other diabetics who they use and got a recommendation.  I signed up with Byram and am hoping to hear from them in the next few days.  In the meantime, I am ALL OUT of Dexcom sensors and am therefore Dex-less. 

In other news, I got my lab results back from last week's blood work.  Nan said everything looked good, just one of my thyroid levels was low, probably because I hadn't taken my dose before I got my blood drawn.  She also said I could stop Vit D for a month if I wanted, as my level is in the 90s.  I just ordered and received a new box of supplements though so I'll just continue taking them.  She may tweak my order in a month to add things that will help with blood sugar management. 

I also told her about how I seem to be bloated/gassy after eating Lily's chocolate bars.  She said that's common but that it may not be the soy like I was thinking but rather the stevia.  She suggested switching to Swerve and said she'd send me a recipe I can use to make my own chocolate bars.  I'll see how that works!

I told her about my back pain, which has been continuing to bother me for the past week or two.  This is longer than most flareups I've had in the past.  She recommended trying CBD oil (Charlotte's Web or Ananda brand) for pain and inflammation relief and also said if I want to have a doctor look at my back, her son is a physical therapist who works with people who have sports injuries and back issues.  So I have some things to research and look into.  She wants to do follow-up labs in 8 weeks, and recommended coming in around noon so that my meds have time to work after I take them in the morning.  She's not changing anything about the dose right now until we run them again.  But I'm just happy my TSH levels are staying consistent.  She said they are the same as last time!  Just waiting for the results to be uploaded onto my patient portal so I can download them for my records.